Here is a video of Spenser's birthday at his Me-maws house. On one video Mason blew the candles out and it made Spenser mad... ha ha! But on this video he is so sweet and let's Ashlyn come and blow them out for him. His sweetness to his sissy just melts my heart. Watch who eventually blows them out again...lil' turd

Lazy days

I'm at work and being lazy, so today you will get a picture from the past. I am guessing this picture was taken back in October 2005. Ashlyn would have been 6 years old.

God please......

My heart skipped

a

beat

yesterday......

Yesterday afternoon I was babysitting for Baby Austin,

the preemie baby that I have asked for prayer for.

I was holding him and he appeared to be upset.....

his body would draw up

and he would let out a

cry.

oh my goodness, it looked all too familiar to me.

God please don't let this baby be having seizures....

right here

with me holding him.

When his mother came to pick him up

she was holding him and he started doing it

again.

I didn't even have to say a word...

she said "I think he might be having seizures".

Mike and I looked at each other....we knew.

I immediately felt sick to my stomach.

He started to whimper

and one

tear fell from his

eye.

My heart hurt so bad as my mind

raced to the what if's...thinking-

what else can his little body hold up to?

He appears to have one kidney functioning-

doesn't have full sight in his eyes-

and now this....

I told her immediately that it appeared

he was having a type of seizure called

infantile spasms.

I am so beyond mad, because I know first hand the damage

that these seizures could do to his body.

Ashlyn was diagnosed at her one year check up with the nasty beast.

It took away her smile, it took away her eye contact

her muscle tone, and the list could go on....

Why is this happening God? Why him?

She took him to his pediatrician today-

***The pediatrician***

who told me that it appeared Ashlyn was having infantile spasms.

He was right about Ashlyn.

I am praying that he is not right about Austin.

He made her an appointment for an EEG---

Dear God please, please prove us wrong, (and nothing worse) I beg you....

WORDLESS WEDNESDAY

Princesses do not need a drivers license

Nope, I am not driving this car -

don't you know that Princesses do not need a license?

I thought you would see it my way!

No Spenser I am not driving this car.... my chauffer will gladly drive me

Are you seeing a pattern here?

Check out that happy face...

my big brother may not fit in this car - BUT

his foot can still reach the pedal! Ha ha ha!

Mason brought home this drawing of himself from school.....

cool message huh?

Spenser's birthday was yesterday~

Happy birthday Spenser!!! I love you very much and I am so proud of you and what an awesome kid you have been for the last 14 years.
You have such a caring heart, especially when it comes to your sister Ashlyn. You made
my heart melt several weeks ago when we were watching Ashlyn sleep and you were playing
with her hair and you said “I am so glad to have a sister like her”. It feels good to know that you love her like like we do.

I am proud of all that you are. You are an awesome bass guitar player, excellent student and friend, professional web surfer (ha ha), crazy crazy ceator of videos for YOUTUBE!! You are a hoot child!! I have enjoyed being your mommy
for 14 years and am thankful to God for giving us such an awesome child as you. Even though you and Mason drive me to drink when you are fighting LOL, I still adore both of you so much. I love you and am very thankful to have you. I hope that you have a very Happy Birthday today!
Love ~Mom

HAPPY 14TH BIRTHDAY SPENSER

She is loved

Pictured above are my 2 girlfriends that I go to Bible study with.

One of them had not met Ashlyn until last week at a groovy church block party.

She used to be a Special Ed teacher and I had told her about

Ashlyn before she actually met her. When she first saw her I thought that she

was going to melt. You could just see it in her eyes that she was

"in love" with her. (ahhhhh, precious, precious lady) We talked for a while

and she asked several questions and she made a comment that made by skin crawl,

but I didn't let her know it.She said "oh my gosh I have goose bumps by seeing

how much your family is in love with this child". While it was awesome for

her to know how much we love and cherish Ashlyn, it made me sad to know that she used to teach children like my Ashlyn and had a bad taste in her mouth by other children

not being so accepted into their own families. When I look at my Ashlyn and

see the innocence and love in her heart, it just rips my heart out to think about

other children with Down syndrome or any disability that are not welcomed into

their own family or given the chance to love and be loved. :(

This girly here~ there is no possible way that she could be loved anymore....

I love her so much my heart hurts!!

Hey sister, soul sister

See the two beauty queens down below??

Let me introduce you to them.

The first two pics are Princess Ashlyn aka~

Ashy, Lou Lou, Sally, Helga, Poopsie

&

the last three pics are of Jaiden aka~

Jaiders, Jaidey, Jaiden Laruski :)

These 2 girls are aka

"the Soul Sisters"

Jaiden is a beautiful little girl who is 6 years old and has Down syndrome.

She & Ashlyn are in so many ways alike and

we have labeled them ~

Soul Sisters.

Jaiden sent the groovy orange shirt from "the House of Blues"

for Ashy's 9th birthday.

Leah, Jaiden's mommy, sent pictures of Jaiden

in her matching soul sister t-shirt.

It appears that Jaiden is trying to be shy

and hide her face from the camera-

yet in all reality she is such a HUGE superstar

and has to remain anonymous in public, he he he!

Traci begged her stinky mommy Leah

to send her a headshot that you could actually see her

beautiful face.... but Leah claims that Jaiden is just too

fast and refuses to be photographed....sigh, the life of a celebrity.

So, you just have to trust me that Jaiden is a beautiful princess

and she is one of our most FAVORITE people with Down syndrome.

Traci and Leah have met in person, but have not yet thrown

together a rocking party for the 2 soul sisters to meet up.

It will happen Leah, it will happen!

We love you Jaiden Laruski!!

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