Wednesday, September 16, 2009
Find something good in every day
Today's goodness... I took Ashlyn to the neuro for a checkup on her seizures. I REALLY liked the doctor that we saw today. We have seen 3 so far and 2 of them I really do like. The doctor that she saw today read through her chart and saw that she had infantile spasms as a baby. He commented that she appears to be developing nicely for a child who had infantile spasms and that some children unfortunately do not develop very quickly after having them. Well even though she is behind her peers with Down syndrome it looks to him that she is moving right along nicely :) Hey, it made my day!!!
Tuesday, September 15, 2009
Saturday, September 12, 2009
Monday, September 7, 2009
Birthday Princess
My Princess Ashlyn turned 10 years old on August 31. It’s hard to believe that it has been 10 WHOLE years since she blessed our family with her birth. She was such a quiet and sweet baby girl who didn’t demand much attention…..and now she is a spunky, wild child woman, who demands your attention!! She is so funny and makes us laugh on a daily basis. She honestly does new stuff now almost every day, even if it is just a new word or even a new attitude….we get something from her every day. For instance…I took cupcakes to her school on her birthday for her class to eat at lunch. When I walked up to her she ignored the pee out of me. You would have thought she was 14 years old and embarrassed that her mom showed up at school!! She was sitting there all straight and proper in her seat in the cafeteria, with a birthday crown on her HEAD waiting for her lunch!! Wild woman NEVER wears anything on her head for more than a few seconds for us. She kept looking away from me like she was saying –please go away!! I told her to give me a kiss and the lil turkey stuck the side of her face out to me, to kiss her cheek! She is such a funny girl! I’m still not believing she wore that crown on her head without a fuss.
Another thing that is hard for me to believe is that her seizures have returned. She hasn’t had a seizure in 8 ½ years. To be honest, I really thought we were out of the woods on those nasty beasts. She had seizures as a baby, every day –throughout the day for 12 mos. When the seizures were finally gone the neurologist informed me that they could return again later in her life, as a different form of seizure. The thought of them returning was always in the back of my mind, but not something that really consumed my thoughts. When she had her first seizure this summer it was so out of the blue and unexpected. She was eating her cereal one morning at the bar in our kitchen. I turned to walk away and took a few steps when I heard a loud THUD. I turned around to find that she had fallen off of the bar stool onto the cold, hard tile and she was seizing. I grabbed her up into my arms and immediately started praying over her, and of course crying and boo hooing because all I could think was “what if she fell on her head wrong and she doesn’t wake up. What if she stops breathing, what if her heart stops beating?” I was more worried about her having a brain injury from the fall, than I was about her having the seizure. With each seizure she had I became more and more at peace about it. Instead of being angry, I would just grab her up and cradle her and pray over her until it stopped. God whispered to me that it would be okay and I believed him. Although Ashlyn went on to have 3 more seizures before her medication was actually started, I can happily say that she has not had any more seizures since she started taking medication and everything IS okay. Throughout her life (and my other children as well) I just turn the issues over to my Lord. I can’t possibly bear the load of heartache, grief and worry on my own, that I as a parent am faced with. God has been so good to me and my family and for that I am very thankful.
HAPPY 10TH BIRTHDAY PRINCESS ASHLYN. I love you more than you will ever be able to comprehend in this lifetime.
Another thing that is hard for me to believe is that her seizures have returned. She hasn’t had a seizure in 8 ½ years. To be honest, I really thought we were out of the woods on those nasty beasts. She had seizures as a baby, every day –throughout the day for 12 mos. When the seizures were finally gone the neurologist informed me that they could return again later in her life, as a different form of seizure. The thought of them returning was always in the back of my mind, but not something that really consumed my thoughts. When she had her first seizure this summer it was so out of the blue and unexpected. She was eating her cereal one morning at the bar in our kitchen. I turned to walk away and took a few steps when I heard a loud THUD. I turned around to find that she had fallen off of the bar stool onto the cold, hard tile and she was seizing. I grabbed her up into my arms and immediately started praying over her, and of course crying and boo hooing because all I could think was “what if she fell on her head wrong and she doesn’t wake up. What if she stops breathing, what if her heart stops beating?” I was more worried about her having a brain injury from the fall, than I was about her having the seizure. With each seizure she had I became more and more at peace about it. Instead of being angry, I would just grab her up and cradle her and pray over her until it stopped. God whispered to me that it would be okay and I believed him. Although Ashlyn went on to have 3 more seizures before her medication was actually started, I can happily say that she has not had any more seizures since she started taking medication and everything IS okay. Throughout her life (and my other children as well) I just turn the issues over to my Lord. I can’t possibly bear the load of heartache, grief and worry on my own, that I as a parent am faced with. God has been so good to me and my family and for that I am very thankful.
HAPPY 10TH BIRTHDAY PRINCESS ASHLYN. I love you more than you will ever be able to comprehend in this lifetime.
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